Special Assurance in Unusual Times

If you are like me, you have exhausted all of Pinterest looking for sensory-friendly, educational activities while at home social distancing. Whether or not your kids are back in school this fall, parenting during the pandemic is hard. This is new territory; every decision seems impossible and there is even more added for us to…

Better than Bad

I took Ellie to meet her new teacher and to visit her new classroom. Her new year of school starts on Monday. She has been at home with me since March. Other than teletherapy to keep up with OT, PT and ST, she really hasn’t had a lot of connection with school. She was excited…

Change is hard.

This week marked the end of an era of sorts for Ellie. It is the official end of her school year and on Monday, she starts in her new classroom with her new teacher and therapists. I already knew that each year she would move to a different classroom with a new teacher, but I…

Ensuring Special Needs are Met

When my daughter Ellie was born with Down syndrome and two heart defects, we were lost on where to start to get her insured. As any parent of a child with special needs knows all too well, dealing with insurance is frustrating. The rules are confusing and ever-changing making sorting through it all a full-time…

We can do hard things.

The week in review through a series of short stories: Ben gets out of bed in the morning a few minutes before I do. Like a saint, he goes to the kitchen and starts the coffee while I sit and read the news. When I hear the coffee pot’s final beep, I stumble my way…

On the Front Line of Special Needs

When our daughter was born we were expecting Down syndrome and heart defects, but as time went on, we learned more about her and global delays, hypothyroidism, ear and eye concerns and lung disease. After telling her nurse that I didn’t want anyone else to come in our room because I couldn’t handle another diagnosis,…