Walking the Line

All day is a balance between letting go and holding onto breath, always waiting on the other shoe to drop. Hope is the mantra on repeat. Everything is going to be ok and it’s all under control, when actually, nothing is normal and it never will be again. Days are spent celebrating both big and…

Special Assurance in Unusual Times

If you are like me, you have exhausted all of Pinterest looking for sensory-friendly, educational activities while at home social distancing. Whether or not your kids are back in school this fall, parenting during the pandemic is hard. This is new territory; every decision seems impossible and there is even more added for us to…

Better than Bad

I took Ellie to meet her new teacher and to visit her new classroom. Her new year of school starts on Monday. She has been at home with me since March. Other than teletherapy to keep up with OT, PT and ST, she really hasn’t had a lot of connection with school. She was excited…

Change is hard.

This week marked the end of an era of sorts for Ellie. It is the official end of her school year and on Monday, she starts in her new classroom with her new teacher and therapists. I already knew that each year she would move to a different classroom with a new teacher, but I…

How to Have It All

I am rewatching one of my favorite television shows, Parenthood, for the third time. I don’t remember the last time I watched it, but I do know that didn’t have any kids and I wasn’t married then.   This time, it was a reality check to learn in the first episode that one of the…

On the Front Line of Special Needs

When our daughter was born we were expecting Down syndrome and heart defects, but as time went on, we learned more about her and global delays, hypothyroidism, ear and eye concerns and lung disease. After telling her nurse that I didn’t want anyone else to come in our room because I couldn’t handle another diagnosis,…