Matters of the Heart

February is celebrated as American Heart Month in an effort to raise awareness about heart health and the prevention of heart disease. Kids with special needs are often at an increased risk of heart conditions. Down (Trisomy 21), DiGeorge (22q11.2 deletion), Turner (Monosomy X), Patau (Trisomy 13), Edwards (Trisomy 18), Alagille and other syndromes carry…

Walking the Line

All day is a balance between letting go and holding onto breath, always waiting on the other shoe to drop. Hope is the mantra on repeat. Everything is going to be ok and it’s all under control, when actually, nothing is normal and it never will be again. Days are spent celebrating both big and…