The Beat Goes On: An Update

This morning I sat in my daughter’s cardiologist’s office while he talked to me about what was wrong with her heart. My husband Ben joined us via Facetime and I held Ellie, who just wanted to hug. We were chest to chest, and I could feel her heart beating while the doctor pointed to the…

Healthier Tomorrows

I started running nearly ten years ago. It has never been anything that I really enjoy and the habit comes and goes. I’ve sworn it off plenty of times in the past and mostly just walk now because of injuries, but if I get overwhelmed, stressed out or excited, I find myself out there running…

Proving me wrong every time

Ellie was kicked out of the G-tube Club this week. She had been a faithful member for over two years, but as she grew older, she found herself unable to continue to abide by the rules and standards. I guess chewing and swallowing her food was just too much of a temptation. I am glad…

Grace is power, not just pardon.

Ellie’s birthday is next week. She will be two years old. I feel like she has been here for a million years. I think it is because of the amount of attention she requires. I keep hearing that she will grow out of this or that medicine or physical restriction, and I find myself wishing…

Donate Life

Before our daughter was born, my husband and I met with Arkansas Regional Organ Recovery Agency (ARORA) about organ donation. In utero, she was diagnosed with two critical heart defects and Down syndrome. We were told to expect the worst and hope for the best when she was born and to also understand the risks…

Heart-Swelling Pride

Ellie was standing on the curb when I got to her school to pick her up yesterday afternoon. I had to stop the car in the middle of the drive when I saw her. She was standing with the help of her little red walker, her hands gripping the handles. She was wearing her leg…

Defining Chaos

August Benjamin joined our family on the day after Christmas. The holidays were a blur. The last month has been a blur. What did I even do five minutes ago? The Honaker house is a disaster these days. There is always a pile of laundry on the couch. The dishwasher always needs to be unloaded….

Fishing out of the same boat

Ellie had a cardiology follow up appointment last week and the news wasn’t great. Through her echo-cardiogram, the doctor found she has developed a new condition that creates a force of blood flow in left side of her heart that he likened to putting your thumb over a garden hose. It is not something that…

Typical

Two-year-old Jack and 1-year-old Ellie have different abilities, but mom Heather Honaker says she still thinks about their futures in similar ways. I have a 2-year-old “typical” son named Jack. He likes to play outside. He likes to be silly and make others laugh. He sings his favorite songs over and over. He is curious…