Special Assurance in Unusual Times

If you are like me, you have exhausted all of Pinterest looking for sensory-friendly, educational activities while at home social distancing. Whether or not your kids are back in school this fall, parenting during the pandemic is hard. This is new territory; every decision seems impossible and there is even more added for us to…

Let’s Go Play

We were at the library when my husband Ben asked me out on our first date. I was leaving from a meeting in one of the conference rooms when I ran into him looking at the used books for sale. I walked over to say hello, and he wrote my phone number down on the…

Better than Bad

I took Ellie to meet her new teacher and to visit her new classroom. Her new year of school starts on Monday. She has been at home with me since March. Other than teletherapy to keep up with OT, PT and ST, she really hasn’t had a lot of connection with school. She was excited…

Change is hard.

This week marked the end of an era of sorts for Ellie. It is the official end of her school year and on Monday, she starts in her new classroom with her new teacher and therapists. I already knew that each year she would move to a different classroom with a new teacher, but I…

Ensuring Special Needs are Met

When my daughter Ellie was born with Down syndrome and two heart defects, we were lost on where to start to get her insured. As any parent of a child with special needs knows all too well, dealing with insurance is frustrating. The rules are confusing and ever-changing making sorting through it all a full-time…

Back to School

Ready or not, here we are. Back to School. It’s the time of year I have been dreading since spring. Do you know what is easy right now? Nothing. There are no easy decisions, no easy solutions; even things like procuring groceries are hard right now. Everywhere I turn, another opinion on what I should…

Pinball Wizard

“Can you try to calm down?” Ben asked me. I dropped what I was doing in the kitchen, said I would be back later, picked up my keys and wallet and walked (some might say “stormed”) out the front door. It was 10:30 a.m. Gus had been screaming all morning. Ellie was getting into everything…

We can do hard things.

The week in review through a series of short stories: Ben gets out of bed in the morning a few minutes before I do. Like a saint, he goes to the kitchen and starts the coffee while I sit and read the news. When I hear the coffee pot’s final beep, I stumble my way…

Proving me wrong every time

Ellie was kicked out of the G-tube Club this week. She had been a faithful member for over two years, but as she grew older, she found herself unable to continue to abide by the rules and standards. I guess chewing and swallowing her food was just too much of a temptation. I am glad…

How to Have It All

I am rewatching one of my favorite television shows, Parenthood, for the third time. I don’t remember the last time I watched it, but I do know that didn’t have any kids and I wasn’t married then.   This time, it was a reality check to learn in the first episode that one of the…